E.S.PKU (European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria)

20.01.2014 – 09:00
European Society for Phenylketonuria calls for minimum standard of care across Europe
Alter, Belgium (ots) - First ever pan-European perspective on optimal care identifies key challenges in this rare genetic disease The first ever pan-European patient/carer perspective on optimal care of the rare genetic disorder phenylketonuria (PKU) has been published in the Orphanet Journal of Rare Diseases. This paper, supported by the European Society for ...
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29.02.2012 – 13:01
E.S.PKU Urges Policy Makers to Close Significant Gaps in Care for Patients with Phenylketonuria (PKU) Across Europe at the European Parliament
Brussels (ots/PRNewswire) - - World Rare Disease Day 2012 Today, on World Rare Disease Day, the European Society for Phenylketonuria and Allied Disorders (E.S.PKU) urged policy makers to bridge significant gaps in Phenylketonuria (PKU[1]) care across Europe during a lunch debate at the European Parliament. The ...
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